The present article illustrates a social constructivist methodology employed in the creation of a children’s book whose aim is the explanation of Juvenile Idiopathic Arthritis (JIA)to newly diagnosed children. Such methodology is based on the active involvement of ill children and adolescent and is made of different phases: 1. the initial creation of a comic- based workbook; 2. the implementation of a workshop with children already affected by JIA; 3. the final collection and organisation of children’s narrative into a final children’s book; 4. the revision of the children’s materials with a group of expert and stakeholders. Each phase of the process led to a meaningful contribution of the final book. The employed social constructivist approach combined with an open and welcoming environment for children facilitated children’s expression of feelings and their ability to listen to their peers. Paediatric consultants gave scientific comments and made the final product medically solid and up-to-date with the latest therapeutic recommendations. This project shows how it is possible to provide writing recommendations and information to children with JIA. Children’s narratives provided insights and information that were sometimes new to medical practitioners and that would probably be otherwise neglected. The methodology explained here is based on a combination of narrative thought and social constructivism and has shown to be effective in helping children understand what JIA and may therefore be extended to future explanation of other children’s illnesses too.
Questo articolo presenta una metodologia socio-costruttivista usata nella realizzazione di un libretto destinato a bambini e ragazzi con Artrite Idiopatica Giovanile, da usare come me- diatore della relazione medico paziente al momento della comunicazione della diagnosi e du- rante il successivo processo di cura. Tale metodologia ha coinvolto attivamente alcuni bam- bini e ragazzi con questa patologia e si è svolta attraverso fasi diverse che hanno compreso: (1) la creazione di un libretto operativo basato su fumetti; (2) lo svolgimento di un laboratorio didattico-creativo con bambini malati e già consapevoli della diagnosi; (3) la raccolta e l’or- ganizzazione delle narrazioni prodotte dai bambini in un libretto finale; (4) La revisione di quanto prodotto dai bambini da parte di genitori e personale sanitario. Ciascuna fase di lavoro ha contribuito alla costruzione del libretto finale. L’approccio socio-costruttivista adottato e il clima accogliente creato durante il workshop hanno facilitato i partecipanti nell’espressione dei loro vissuti e nell’ascolto dei loro coetanei. Il personale pediatrico consultato ha fornito indicazioni scientifiche per far sì che i contenuti trasmessi fossero corretti e aggiornati dal punto di vista medico-terapeutico. Il presente progetto dimostra come sia possibile fornire informazioni scritte che riguardano la malattia e la sua gestione terapeutica a bambini con AIG. Le narrazioni di altri bambini affetti da questa patologia hanno fornito informazioni che altrimenti sarebbero probabilmente rimaste trascurate da adulti e personale sanitario. La me- todologia presentata in questo lavoro può essere testata e verificata in futuro con pazienti af- fetti da altre patologie per valutarne l’efficacia e l’estendibilità.
"È come avere delle catene alle ginocchia": La creazione di un libretto per spiegare l'Artrite Idiopatica Giovanile secondo un approccio socio-costruttivista
CAPURSO, Michele;
2016
Abstract
The present article illustrates a social constructivist methodology employed in the creation of a children’s book whose aim is the explanation of Juvenile Idiopathic Arthritis (JIA)to newly diagnosed children. Such methodology is based on the active involvement of ill children and adolescent and is made of different phases: 1. the initial creation of a comic- based workbook; 2. the implementation of a workshop with children already affected by JIA; 3. the final collection and organisation of children’s narrative into a final children’s book; 4. the revision of the children’s materials with a group of expert and stakeholders. Each phase of the process led to a meaningful contribution of the final book. The employed social constructivist approach combined with an open and welcoming environment for children facilitated children’s expression of feelings and their ability to listen to their peers. Paediatric consultants gave scientific comments and made the final product medically solid and up-to-date with the latest therapeutic recommendations. This project shows how it is possible to provide writing recommendations and information to children with JIA. Children’s narratives provided insights and information that were sometimes new to medical practitioners and that would probably be otherwise neglected. The methodology explained here is based on a combination of narrative thought and social constructivism and has shown to be effective in helping children understand what JIA and may therefore be extended to future explanation of other children’s illnesses too.I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.
